Showing posts with label RAtologist. Show all posts
Showing posts with label RAtologist. Show all posts

Thursday, February 21, 2008

Delayed

out of Las Vegas due to San Francisco weather. My flight on US AIR was running about an hour and a half behind schedule. I was truly hoping it would not be delayed any further as I have a rescheduled RA appointment at 4:00pm. As a standby employee, I was cleared immediately by the nice male gate agent who gave me an aisle seat close to the front of the aircraft. With another SFO flight that was scheduled and now delayed, the agent working that one started piling passengers onto my flight which was now going to be very full. Needless to say, I made it. While waiting in the boarding area, I noticed "Dog, the bounty hunter", from Hawaii sitting at the slot machine area being closely watched by his co-worker/body guard. In a few seconds, his wife Beth showed up by his side and you can't miss her! I tried to dish out my camera from my bag but they were gone at the sound of the 1st class boarding announcement for Phoenix. That would have been a sweet picture.
My flight home was a little turbulent as we landed in raining San Francisco a little after 2:00pm. I drove home to check up on my son and the house and let Lynn know that I landed safely.
I had not seen my RAtologist since December when I started my Humira injections. In between that time, I have taken a few blood tests at the lab and so far, he is very pleased at where my marks are. My SED rate when I first started in August was over 100 when my Primary doctor diagnosed me. My RA, one week later pegged it at 96. Today, he stated it was at 32. He lowered my Prednisone from one and half tablet to one only. I'm still taking one folic acid and one multi-vitamin daily. 4 tablets of Methotrexate is still taken weekly. He was also very pleased to hear that I have not taken any Aleve or Motrin for pain. I would really rather feel the pain than NOT to feel any pain. How else can I identify if my body is hurting? My visits with him will be twice a year and hopefully down to once a year unless anything significant happens between now and then. I'll still be coming in monthly for more expanded blood tests which he will CC to my primary doctor. I am very happy that he's happy. I feel wonderful right now and very pleased with the results of my medication. Sure, I've gained a bit of weight versus the pain but to keep myself in check and back to normal, it's worth a little weight gain.

Wednesday, February 20, 2008

Poolside

at the Paris Hotel in Las Vegas as I am comfortable in my lounge chair feeling the gentle breeze of the wind waft over my body and the warmth of the sunshine upon me. What a grand feeling knowing that I don't have to be anywhere at anytime with anyone, decadent! So far, I have not won anything on the silver mechanical monstrosities called slot machines. My budget was very low coming to Vegas in the first place with only one thing in mind....picking up my Starbucks coffee kit. Relaxed as I am, this will be my last night here in this beautiful hotel. I will be leaving early in the morning to catch whatever flight that will get me home in time for my RAtologist appointment at 4:00pm which was originally scheduled for today. About an hour in the sun was good and called it a day for the pool and started towards the spa for another workout on the treadmill and bicycle. I love my Diamond Card and all the perks that go with it. After an hour of working out, I made my way back to my room to rest and take advantage of my tub for a bubble bath, delicious! Only to shower off and take a short nap before going to the Diamond Lounge for something to eat. I met quite a few personable waitstaff while here in the lounge and it shows that they truly enjoy what they're doing. Rustin and Mario remember me from previous nights ago and nod, "Good to see you again!". I make my way over to my usual corner of the dining room in my two seater booth tucked away in a nook. Again, sandwiches are the main course with crispy chicken wings and dim sum rounding out the hors d'oeuvre menu. Drinks flow freely here and the patrons come and go. I take my white zinfandel and a cappuccino for drinks while noshing away on the canapes, deserts and appetizers. My belly full again, I bid adieu to the staff that has treated me as if they have known me for ages and set out to find a winning machine.

Friday, February 15, 2008

Fifth shot, right thigh, missed a day

It still doesn't get easier as I continue to inject myself with the Humira medication. I still talk myself into it and still wince upon application of it to my thigh area. I imagine that when I'm 65, I will be more tolerant of this procedure. I missed yesterday's injection due to that I work through several shifts and did not have the Humira with me. My RA said to take it immediately the next day and resume my injection the next time. I felt so bloated and swollen yesterday that during a few brief break times, I was able to put my feet up and rest. I felt much better after a nap and I promised that I will not ever work that type of shift again. Working 20 plus hours in a day is crazy, so what was I thinking? I have to learn to say "NO"!
I rested all day today and if felt good to stay in bed until 10:00am. After some leisure time, I got ready to run some errands before the weekend. I dropped into the lab to submit more blood for my RA appointment next week, visited the bank to make a deposit and filled up my truck tank with gas for forty dollars which does not go a long way anymore.
Coming home to a quiet environment, I relish the thought of taking another nap but instead I watch the American Idol reruns that I TiVo'd and have a plate of leftover spaghetti.

Friday, February 8, 2008

Blogs

on Rheumatoid Arthritis is plentiful and abound on the Internet. In my search for knowledge about this disease that has taken up residence in my body, I am the gracious host and have learned to co-exist with this foreign invader by administering medicine that will help to keep the swelling from gravitating upwards making my fingers look like pudgy sausages and from the excruciating pain that rides along with it. Of course there are side effects and a myriad of other problems that come with taking these medicines. My RAtologist is keeping a close watch on my blood and my state of mind during my appointments. There are many helpful and informative sights on RA originating from society and centers for health. Knowledgeable as they are, the blogs or rather reports are very detailed as far as talking about the factors, symptom's and depth of the disease. I find comfort in the blogs written in part by people like me that have a life, family, work and are trying to understand the "why me?" syndrome. I remember when I was first diagnosed with this disease. I was thinking, "ok, it's not Cancer" and I wasn't really too worried about it. After delving into the Internet on any and all information about rheumatoid arthritis, I was exhausted. The only visual material wording that stunned me in all of these blogs were the words, "No Cure". At least Cancer has a cure! My emotions were overwhelmed and I cried for a few moments at a time. There was too much for me to do before I become totally debilitated by this disease. It took me a few months say the word "disease" and acknowledge it as such. After a healthy amount of reading and extensive visits with my RAtologist, my state of mind is in a better place and attitude. I have learned to cope with this foreign resident and have given everything it needs so that we can peacefully co-exist one day at a time.

Thursday, December 20, 2007

Up early

to tackle my day. Life must go on after all. I have make a phone call to the doctors after 10:00am so that they can slot me in to take my Humira shot with a pen looking device I picked up yesterday at Walgreen's. Since I have a great medical plan, this prescription only costed me $25.00 co-payment. After looking at the "you saved" part, it blew me away! My insurance saved me $1654.99!! Can you freakin believe that? Expensive little things and they also need to be refrigerated. For now, my medication calls for an injection every other week. I have a three week vacation coming up in March and I'll have to re-think my destination. This vacation was planned for February, that's when Lynn and I were thinking of escorting her daughter Camden to London and spending a few days there for our mini vacation. I thought for sure I had the correct dates but miss bid my vacation to March. My daughter Nani always says, "things happen for a reason". My excuse is, "I'm gettin' old". Instead, I was thinking on visiting some friends of mine. Pearl and her partner Michelle in Alabama, recently moved Marilee in Atlanta and Angie and her partner in Florida. Maybe my fly boy, the international gay playboy of the skies, Michael, and pay a visit to him in Florida.
So, I have to find some time today to get this shot administered and get my loan papers ready for Sarah this weekend as our ladies group will be going to a few parties. Again to see an old friend in the city who is throwing one at his place. Ken is a long time friend who I haven't seen for at least 10 years since we got together in New Orleans for Halloween when my hula group was there performing for a well to do artsy gentleman. From what I hear, he lives in a loft. I'm not sure if he's partnered. Many of my gay men friends have beautiful huge lofts in the city. Why? So that they can throw the most fabulous parties and galas you have ever seen. Their parties are truly amazing!
I'm steering away from the subject again. I do that quite a bit and don't mean to. I've got to fill out papers for my 401k loan process which didn't get processed for some reason. I'll have to go into work to get a copy of the doctor papers that re-certified me unable to work for this month of December and to pick up my bid sheet for my new work schedule.
I finally wrote an email last night asking Lynn for my small refrigerator back because it belongs to my son. I haven't received an answer yet. I know we are both trying to process what happened this past Monday because I totally cut her off without an explanation or conversation but said everything in a subtle email. It wasn't vicious or attacking because I was hurting and still love her to some magnitude. I'm sure she's hurting and devastated like I am but for different reasons. I thought that I would pick up the "fridge" since I was going to be down that way in San Mateo for my appointment. It could be that I just want to see her again. Hear what she has to say. Or me being an idiot and thinking that I could take her back and forget about everything. My thoughts about us living together in our Golden Years, implosion complete, damage is done. OK Lani, bend over so that I can kick you in the arse and knock some sense into you! Reality sets in and the truth is known. I can't go back, not after what has been done, written, said or otherwise. Move on, Lani, move on! Yes, I will. One step at a time. One step at a time.

Wednesday, December 12, 2007

Humira

is the name of my next set of medicine that I will be taking. My RAtologist did not like where my marks were at this time and increased my prednisone to 2 tablets tonight and two tomorrow morning to kick start it and hopefully to me in better spirits and out of the pain that I am in right now. He explained that I will have to be checked with a TB shot before taking the Humira and gave me three choices on how to take it. The first being that I would have to come into the office and have the medicine administered by IV and one hour to sit in the office. The second would be to self inject myself with one shot every two months or third, coming into the office every week for a shot. I'm not too keen on self administering shots to myself and of course the IV sounded wonderful until he showed me the tampon looking tube of medicine that I would be taking. I wouldn't have to see the needle but I will feel a little sting. It looked very uncomplicated and easy but was not going to get that today. They have to check with my health plan to make sure that they can pay for most of it. After further researching, I found out that this particular medicine can cost upwards of $13-$15,000.00 dollars for a year! Holy Crap! I hope i don't have to pay for any of this.
It's time to refill all of my medicine and I'm so glad that it costs me a mere $5.00 per prescription to do that. Walgreen's gives you instructions along with your prescription and it also tells you how much you saved. I better keep working for as long as I can at least up until I'm 60 but I may have to settle for 55.